Comments on: Death of a Thyroid: my diagnosis and treatment for thyroid cancer http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/ World Class Triathlete, Coach, Speaker, Mother, Cancer Survivor Mon, 29 Sep 2014 05:57:13 +0000 hourly 1 By: Stephen D http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-14318 Mon, 29 Sep 2014 05:57:13 +0000 http://www.karensmyers.com/?p=403#comment-14318 I really enjoyed this post! I am 55 years of age and was diagnosed with a dead thyroid gland 9 years ago after a sever case of bacterial meningitis. I was placed on Levothroxine 125 MCG’s and was told I would have to take it for the rest of my life. That dose was sufficient for almost 8 years and then it was discovered that my bodies chemistry had changed a bit, so they moved me up to 150, and then up to 175, and then back down to 150, where I have been now for about the passed 4 months. I have experienced a great deal of fatigue over the past 9 years that truly only seems to get worse. I am now taking Wellbutrin XL 300 MG’s to help combat the fatigue which has noticeably raised my energy level but done very little for the overall fatigue. I am in rather good overall health today and am hopeful that there is a possibility of someday being able to regenerate my dead thyroid gland. If anyone knows of this being possible, please feel free to talk about it.

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By: Angie Martinez http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-9306 Tue, 19 Aug 2014 19:38:41 +0000 http://www.karensmyers.com/?p=403#comment-9306 I just want to say Thank You for sharing your story. Even though I haven’t exercised as you have. But I have been experiencing everything that you described. When I heard the word cancer , I was scared to death and then the thought was okay, what do I do now? Although my endo has stated that he doesn’t feel that I should have the RAI but to be checked once a year. And at the time, I felt reassured that everything would be okay even though he said it was only a tiny dot ,(like the top of the head of a butterfly) and nothing to be to concerned about. But it wasn’t until I went to my grandmother’s funnel, when I seen my uncle, who has colon cancer in stage 4, that I had a lot of questions and experiencing all the muscle cramps, fatigue and just can’t the energy to go to work. Although that does take me over an hour , then I go in. And as you are reading this my thoughts are probably all over the place and this is how it has been since the surgery on June 26,2014. I am just tired of being tired of feeling this way and I want my life back.

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By: Catherine Nichols Pogorzelski http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-204 Sun, 23 Feb 2014 19:07:08 +0000 http://www.karensmyers.com/?p=403#comment-204 Let me clarify, the RAI did NOTcause the “Dry mouth” I lost the teeth due to “suspected Sjogren’s syndrome” I test negative (first tests done in mid 90’s because of ongoing health issues, blamed initially on “Fibromyalgia” a wastebasket diagnosis! IMO) ) (serum/blood and parotid gland biopsy) yet based upon all signs and symptoms, for example: dry mouth, dry eyes, salivary stones forming under my tongue, many prior cavities (@ age 13, I had 52 cavities in 26 teeth) my mouth makes no real true “saliva” just water now) and the icing” on the cake, pancreatitis, dropping to 92 lbs without “dieting” If your neck hurts and is swollen, this should stop shortly; if not get checked by an endocrinologist that you TRUST! I had the RAI done in 2005 and NOW have FNA diagnosed Thyroid Cancer, I am now trying to schedule surgical removal of thyroid gland, along with brain surgery (the arteries at the base/occipital area of neck are twisted up within nerves, this was caused by most likely by my thyroid issue, so over the years, calcification of the styloid process was the result, this is called “Eagle’s syndrome,” that even docs at places like Johns Hopkins, have a hard time diagnosing. They refuse patients anymore there for this, disgusts me that no one can get really good care and we are forced to scour the NET! I am self dagnosed but the ENT agrees that my imaging shows they are elongated, until they are removed and “treated properly” will we know what is in the bone, i.e. any Gadolinium I have high amounts of Gadolinium in me, Magnevist is the name-brand, from MRI contrast, done for the undiugnosed Lyme disease (Lyme is what made me sick to begin with, bitten in 1986 and what could have been treated efficiently and effectively many years ago, with inexpensive antibiotics, is now costing me dearly, my insurance too! over $18,000 in the past 3 months alone! Once I added up some Explanations of Benefits and it was almost $1/4 Million and untold physcial hardship. I will hold thso eresposible for my health, accountable in the long run! Don;t be “scared” of anything, just make sure oyu do the research BEFORE you allow docs to do anything, get a consensus of opinions before oyu allow anything into your body. NIEO (Nothing In Everything OUT) Meaning stick nothing into veins, but take out blood, urine, hair, nails even a dermal biopsy, to hepl diagnose what a problem is. BUT I trusted the medical community and now I have toxic heavy meatla poisoing that a dr at NYU, DR Lewis Nelson, has told me, “you need to come to grips wiuth what has happened to you and you will NEVER prove that it’s from GADOLINIUM” That is the same as being RAPED, pointing to the rapist in the corner of the room and teh doctors UNWILLING to do a rape kit, I KNOW hat is harming me, yet the doctors are REFUSING to believe what they are seeing in my body/symptoms, ie: Systemic sclerosis/fibrosis of bowel etc., Bayer & GE KNOW these are poisons and continue to PUSH use of this toxic heavy metal POISON into the veins of unsuspecting MILLIONS of patients, until we all get as up in arms, as we OUGHT to be, why do you think there is this increase in “Fibromyalgia?” it is really FIBOSIS in thsoe having had MRI contrast and GE & BAYER are accountable! Hope you are well!

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By: Lenora http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-201 Fri, 07 Feb 2014 01:12:37 +0000 http://www.karensmyers.com/?p=403#comment-201 Hello. You mentioned in a blog that as a result of RAI, you now suffer from dry mouth & eyes & that you have lost all your teeth. That must have been really awful. I myself am in isolation, having had the radio iodine treatment a couple days ago. My neck hurts like crazy & is surprisingly swollen. No one said anything to me about this treatment adversely affecting my teeth. How does this come about? I would love to hear from you….this really scares me. Wishing you well. Thank you in advance for your time. Lenora

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By: Catherine Nichols Pogorzelski http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-197 Wed, 08 Jan 2014 23:01:33 +0000 http://www.karensmyers.com/?p=403#comment-197 I was just diagnosed as having Thyroid cancer and happened upon your blog posts. Let me ask, in connection with your parotid gland swelling at the time of the RAI, did you have any residual parotid gland effects POST RAI, ie, any dry mouth, dry eyes, teeth problems? How are you doin grigh tnow? I Had RAI in 2005, which was supposed t effectively ‘kill” my thyroid, I’ve been on Compunded Thyroid medication ever since. Having neck issues with swallowing, I went to a major medical center for FNA, wehre teh cancer was found on one side only, but the doctor wants to remove the thyroid in its’ entirety. (I may also have elongated styloids, aka Eagles’ syndrome) and they have a great skull based surgery center tehre. I have diagnosed myself and have been right about everything I have had so far…Continued success in your endevours and please let me know about your parotid gland as I am curious ( I test negative for Sjogren’s syndrome as about 40% of patients do, but I am diagnose nonetheless, from dry eye to dry mouth, to loss of all teeth to pancreatitis) When it rains, I seem to be right in the middle of the stream, without umbrella nor paddle!

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By: karen/michael michael http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-182 Sun, 06 Oct 2013 03:38:57 +0000 http://www.karensmyers.com/?p=403#comment-182 I think the weird stuff Dr. Gaz was referring to was just more lymph nodes that were affected. But he had been working on me for 6 hrs so I think he hoped the rest of it was small enough to be mopped up by the RAI. Maybe if I had done the RAI immediately it would have been? I do wonder–but I will never know.

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By: Susan http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-181 Tue, 17 Sep 2013 20:55:07 +0000 http://www.karensmyers.com/?p=403#comment-181 Thank you for sharing your story. Have nodule and enlarged lymph nodes. I am curious about the comment that was made about the weird looking stuff that Dr Gaz made at your post-op appointment. Has that ever been explained or a biopsy to determine what the weird stuff was? I too do not have a hollow on my right side~ I first commented on this in 2007… I can feel lumpy ish masses on right side that cannot grab/pinch on left side. You guessed it…. nodule on thyroid on right side and enlarged lymph nodes on right side as well. Your story is inspiring…a true heart and will of a champion… Minus a thyroid….

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By: Janet http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-180 Fri, 13 Sep 2013 19:42:27 +0000 http://www.karensmyers.com/?p=403#comment-180 Holy crap, you are inspiring! I was just told that my thyroid biopsy was “suspicious” for papillary cancer, and it’s a huge relief to read your story. You are a really strong woman. Thank you for sharing all this.

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By: lymphoma http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-175 Wed, 14 Aug 2013 19:32:23 +0000 http://www.karensmyers.com/?p=403#comment-175 Cancer treatment depends on factors which include the age and gender of the patient, his health record along with the extent to which the illness has spread. Mainly, the treatment contains Radiation therapy, chemotherapy and biological treatment. When fighting the disorder of cancer in lymph nodes, your health care Adviser and physician are the greatest source of guidance.

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By: Chandra http://www.karensmyers.com/death-of-a-thyroid-my-diagnosis-and-treatment-for-thyroid-cancer/#comment-168 Mon, 29 Jul 2013 09:20:47 +0000 http://www.karensmyers.com/?p=403#comment-168 Choosing foods that have a low glycemic number cause smaller changes in the blood, causing nausea and weakness.

Particularly if you lose weight when dieting macros, that might just
not be hungry all the time, the weight will continue to be a” work in progress.

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